FAQs


Table of Contents:

  1. What is the Indiana COVID-19 Registry?
  2. What is the purpose of the Indiana COVID-19 Registry surveys?
  3. Who can respond to the surveys in the Indiana COVID-19 Registry?
  4. Why should I participate in the Indiana COVID-19 Registry surveys if I have not tested positive for COVID-19?
  5. Can I save the responses and return later?
  6. How will my participation in the Indiana COVID-19 Registry help our communities?
  7. How long will it take to complete a survey?
  8. Why should I provide my address?
  9. How do you ensure that my personally identifiable information is stored safely?
  10. Who will be able to see the data I provide?
  11. Does the survey collect information about citizenship or immigration status?
  12. Can a healthcare provider or insurance company access the data I provide for this survey?
  13. What if I made a mistake while taking a survey and need to update my answers?
  14. Who can I contact if I have questions about a survey?
  15. How do I log in to the website?
  16. How do I log out of the website?
  17. How do I change my password?
  18. I tried to log in with my email address but the web page says that "No user with that email address exists"
  19. I am not able to log in. Were my answers saved?

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What is the Indiana COVID-19 Registry?

The Indiana COVID-19 Registry is a research project that aims to provide real-time information on the spread of COVID-19, who is being affected, and how. This project is led by Dr. Marie Lynn Miranda from the University of Notre Dame.

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What is the purpose of the Indiana COVID-19 Registry surveys?

The Indiana COVID-19 Registry surveys serve to track the spread of the virus over time and across geography and measure the economic and health impacts of COVID-19. It does so by collecting health, economic, behavioral, and exposure information from individuals who are currently living through the pandemic.

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Who can respond to the surveys in the Indiana COVID-19 Registry?

Any Indiana or Michigan resident who is 18 years or older can participate in the Indiana COVID-19 Registry surveys, whether or not you tested positive for COVID-19.

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Why should I participate in the Indiana COVID-19 Registry surveys if I have not tested positive for COVID-19?

In research studies, scientists usually compare people who have been affected by an event to people who have not been affected. If you have not been affected, your responses provide valuable information for making this comparison.

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Can I save the responses and return later?

No. If you navigate away from a survey while completing it, any answers will be lost.

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How will my participation in the Indiana COVID-19 Registry help our communities?

The information you provide to the registry will help determine the health and economic impacts of COVID-19, and will serve as a tool to track the spread of the disease. The registry will provide regular summary reports to the public and government officials. This valuable information will help health officials determine the correct approach to mitigate both the spread and effects of COVID-19.

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How long will it take to complete a survey?

After reading the consent form, it will take you about 10-15 minutes to complete a survey.

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Why should I provide my address?

One goal of the surveys is to link environmental information with health information. An example is linking air pollution data to the address where you lived during the COVID-19 pandemic. We cannot do this without residential address information.

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How do you ensure that my personally identifiable information is stored safely?

Your personally identifiable information (PII) is stored on restricted access servers located at the University of Notre Dame and secured via best practices by professional systems and software engineers.

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Who will be able to see the data I provide?

Only Indiana COVID-19 Registry staff and affiliates will be able to see the data you provide. All of these people have extensive training on data confidentiality and data security.

The Registry team may share data with policy makers or health/housing researchers. Usually, we remove identifying information such as name, date of birth, and address. Researchers who want access to identifying information will need permission from their home institution and the University of Notre Dame. Notre Dame experts on security and privacy will look at every request carefully. Notre Dame will only agree if we are sure we can minimize risks to your privacy.

We plan to report on what we learn from the registry, but we will not include any information that would identify you or any other participants.

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Does the survey collect information about citizenship or immigration status?

No.

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Can a healthcare provider or insurance company access the data I provide for this survey?

No. Only approved Indiana COVID-19 Registry staff and affiliates can access your personally identifiable information. Only data that have been summarized will be made public.

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What if I made a mistake while taking a survey and need to update my answers?

If you believe you made an error while taking a survey, use the survey’s “Previous” button to go back to any page and update the information you provided. If you have already submitted the survey, we do not currently offer a way for you to modify your answers. For now, you can notify us by email at incovidreg-list@nd.edu that your survey answers need to be modified. Include the email address you used to register but DO NOT provide any detail about what needs to be modified. We will contact you later and provide a way to securely make these changes.

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Who can I contact if I have questions about a survey?

You can send an email to incovidreg-list@nd.edu. Though you should identify yourself in the email, please do not provide any personal health information.

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How do I log in to the website?

Go to https://healthregistry.nd.edu/login and enter the email address you used when you registered, then enter your password.

If this is the first time you are logging in, a temporary password has been created for you and has been sent in a message to the above email address right after you completed the survey. If you cannot find that email message, you can reset your password by going to https://healthregistry.nd.edu/reset_password.

If you are using a public or shared computer and have logged in, remember to log out after viewing the website.

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How do I log out of the website?

Click or tap on the Logout link.

If you use a desktop, laptop, or tablet with a wide screen, the Logout link is located at the top right corner of your browser window.

If you use a smartphone or a tablet with a narrow screen, you will see a button with three horizontal lines in the top right corner of your browser window. Click on that button to reveal a menu, then click on Logout from that menu.

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How do I change my password?

If you forgot your password, first go to https://healthregistry.nd.edu/reset_password to reset your password.

If you know your password, first log in by going to https://healthregistry.nd.edu/login, then click on the My Surveys link in the top menu. In the “My Surveys” page, click on the “Change Password” button, enter your current password and your new password twice, and click on Update.

NOTE: On devices with narrow screens (smart phones and small tablets), the My Surveys link is found within the Menu button. This button has three horizontal lines. Clicking on it will reveal menu options, including the My Surveys link.

If you are using a public or shared computer and have logged in, remember to log out after viewing the website.

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I tried to log in with my email address but the web page says that "No user with that email address exists"

Please note that the portion of an e-mail address before the @ symbol is case-sensitive. For example, in this registry, john.smith@email.com is different from John.Smith@email.com. Please enter your email address exactly as you entered it when you registered. Note that some mobile devices automatically capitalize some letters.

If you are having trouble logging in or do not remember the e-mail address you registered with, please consult the welcome e-mail from the Indiana COVID-19 Registry with the subject "Indiana COVID-19 Registry Registration Confirmation". It contains the e-mail used to register your account.

If you are still unable to log in, please contact the Indiana COVID-19 Registry team at incovidreg-list@nd.edu.

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I am not able to log in. Were my answers saved?

If you clicked on the Complete button at the end of the survey and were shown a page thanking you for your participation, your answers were saved; you do not need to log into your account for your answers to be considered. The purpose of logging in is to see what surveys you have completed so far and what new surveys are available. Moreover, as new surveys come in the future, we would notify you by email if you agreed to be re-contacted.